Denialism Blog

  • The Obama Plan – Part I

    We’re starting to hear about how Obama intends to implement healthcare in this country.

    President Barack Obama says he’s open to requiring all Americans to buy health insurance, as long as the plan provides a “hardship waiver” to exempt poor people from having to pay.

    Obama opposed such an individual mandate during his campaign, but Congress increasingly is moving to embrace the idea.

    In providing the first real details on how he wants to reshape the nation’s health care system, the president urged Congress on Wednesday toward a sweeping overhaul that would allow Americans to buy into a government insurance plan.

    Obama outlined his goals in a letter to Sens. Edward Kennedy, D-Mass., and Max Baucus, D-Mont., chairmen of the two committees writing health care bills. It followed a meeting he held Tuesday with members of their committees, and amounted to a road map to keep Congress aligned with his goals.

    The letter published at whitehouse.gov, lays out some basic ideas, but it seems as though Obama is willing to have congress work out the specifics.

    Let’s go through his recommendations and talk about the implications.
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  • Know Privacy Report: Google Web Bugs on 88% of Websites

    I’m very proud of the Know Privacy team, a group of three students who performed a broad analysis of online privacy issues for their master’s project at UC Berkeley’s School of Information. The study is featured today on the New York Times Bits blog. Several findings are notable:

    They found: “From our analysis, it is apparent that Google is the dominant player in the tracking market. Among the top 100 websites this project focused on, Google Analytics appeared on 81 of them. When combined with the other trackers it operates, such as DoubleClick, Google can track 92 of the top 100 websites. Furthermore, a Google-operated tracker appeared on 348,059 of 393,829 distinct domains tracked by Ghostery in March 2009 (over 88%).”

    Also, under the Bush administration, the Federal Trade Commission has framed privacy as one of “consumer harms.” That is, they claimed (without any evidence), that consumers really cared about privacy issues that caused harm. However, in an analysis of the FTC’s own consumer complaint data, the group found that American consumers were most frequently complaining about a lack of control over personal information.

    The team investigated web site affiliate sharing too. The public policy debate around information sale generally is limited to third parties. There is a growing consensus, driven by international privacy rules, that companies should not sell personal information to third parties without affirmative consent from consumers. However, affiliate networks are very large, and US privacy law generally does not allow consumers to restrict the flow of personal information among affiliated companies. In looking at the top websites, the average had almost 300 affiliates. Newscorp, the company that owns myspace, has 1,500 affiliates. Identifying affiliates was very difficult: “We sent each company a request via email or an online web form for a list of each affiliate they may share data with. We received 14 replies, but none included the lists we asked for.”

    Finally, it’s worth checking out the team’s findings on third party tracking: “…36 of the [top 50] websites affirmatively acknowledged the presence of third-party tracking. However, each of these policies also stated that the data collection practices of these third parties were outside the coverage of the privacy policy. This appears to be a critical loophole in privacy protection on the Internet.” Regulators should rethink this practice. Websites claim that they do not sell personal information to third parties, but then they allow third parties to follow you on their site. This seems to me to be outside consumers’ expectations.

  • Oprah is a crank

    PZ brings to my attention this article in Newsweek which sums up Oprah’s views on health, and one sadly must come to the conclusion that Oprah is a crank. Based on our definition of crankery, one of the critical aspects is the incompetence of an individual in judging sources of information. How else can you describe her dismissal of legitimate medical opinion for the pseudoscience of celebrities like Suzanne Somers or Jenny McCarthy?

    That was apparently good enough for Oprah. “Many people write Suzanne off as a quackadoo,” she said. “But she just might be a pioneer.” Oprah acknowledged that Somers’s claims “have been met with relentless criticism” from doctors. Several times during the show she gave physicians an opportunity to dispute what Somers was saying. But it wasn’t quite a fair fight. The doctors who raised these concerns were seated down in the audience and had to wait to be called on. Somers sat onstage next to Oprah, who defended her from attack. “Suzanne swears by bioidenticals and refuses to keep quiet. She’ll take on anyone, including any doctor who questions her.”

    That would be a lot of doctors. Outside Oprah’s world, there isn’t a raging debate about replacing hormones. Somers “is simply repackaging the old, discredited idea that menopause is some kind of hormone-deficiency disease, and that restoring them will bring back youth,” says Dr. Nanette Santoro, director of reproductive endocrinology at Albert Einstein College of Medicine. Older women aren’t missing hormones. They just don’t need as much once they get past their childbearing years. Unless a woman has significant discomfort from hot flashes–and most women don’t–there is little reason to prescribe them. Most women never use them. Hormone therapy can increase a woman’s risk of heart attacks, strokes, blood clots and cancer. And despite Somers’s claim that her specially made, non-FDA-approved bioidenticals are “natural” and safer, they are actually synthetic, just like conventional hormones and FDA-approved bioidenticals from pharmacies–and there are no conclusive clinical studies showing they are less risky. That’s why endocrinologists advise that women take the smallest dose that alleviates symptoms, and use them only as long as they’re needed.

    This is where things get tricky. Because the truth is, some of what Oprah promotes isn’t good, and a lot of the advice her guests dispense on the show is just bad. The Suzanne Somers episode wasn’t an oddball occurrence. This kind of thing happens again and again on Oprah. Some of the many experts who cross her stage offer interesting and useful information (props to you, Dr. Oz). Others gush nonsense. Oprah, who holds up her guests as prophets, can’t seem to tell the difference. She has the power to summon the most learned authorities on any subject; who would refuse her? Instead, all too often Oprah winds up putting herself and her trusting audience in the hands of celebrity authors and pop-science artists pitching wonder cures and miracle treatments that are questionable or flat-out wrong, and sometimes dangerous.

    But back on the Oprah show, McCarthy’s charges went virtually unchallenged. Oprah praised McCarthy’s bravery and plugged her book, but did not invite a physician or scientist to explain to her audience the many studies that contradict the vaccines-autism link. Instead, Oprah read a brief statement from the Centers for Disease Control saying there was no science to prove a connection and that the government was continuing to study the problem. But McCarthy got the last word. “My science is named Evan, and he’s at home. That’s my science.” Oprah might say that McCarthy was just sharing her first-person story and that Oprah wasn’t endorsing her point of view. But by the end of the show, the take-away message for any mother with young kids was pretty clear: be afraid.

    Dangerous is right. One wonders why the CDC doesn’t have a public health authority devoted to studying the spread of quackery at the hands of celebrities and promoters of woo such as Oprah. It’s disappointing though, she’s clearly an intelligent person and has the potential to do so much good, but instead chooses to follow the advice of any celebrity at hand who will tell her and her audience what they want to hear.

    What’s worse is that while seeking advice from quacks who promote this wishful thinking, at the same time she reinforces that most fundamental aspect of medical woo. When you are sick it isn’t because human bodies are fragile, or they wear out, or are attacked by bacteria and viruses, instead it’s your fault. Sickness isn’t an accident. It’s your failure. You failed to take supplements, or you failed to protect yourself, or you are weak-minded, or you failed spiritually. Of course there are things that we can do to protect ourselves and stay healthy, I wouldn’t suggest some form of health fatalism. But medical quackery takes a healthy attitude of self-protection to an extreme of self-flagellation. It promotes the idea that there is always a way of staying healthy, (take this vitamin!) when in reality sickness and death comes to us all no matter how hard we wish it were otherwise. This wishful thinking and self-doubt is, of course, what is exploited to sell quack remedies.

    Oprah fails her audience, not only in her incompetence in judging medical expertise, but also for complicity in this most insidious aspect of quackery, that of blaming the victim.
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  • What's sad is that this actually works

    The onion, as always, nails it:

    Oh, No! It’s Making Well-Reasoned Arguments Backed With Facts! Run!

    I…I think it’s finally over. Our reactionary emotional response seems to have stopped it dead in its tracks. If I’m right, all we have to do now is smugly reiterate our half-formed thesis and–oh, no! For the love of God, no! It’s thoughtfully mulling things over!

    Run! Run! It’s making reasonable, fact-based arguments!

    Quickly! Hide behind self-righteousness! The ad hominem rejoinders–ready the ad hominem rejoinders! Watch out! Dodge the issue at hand! Question its character and keep moving haphazardly from one flawed point to the next!

    All together now! Put every bit of secondhand conjecture into it you’ve got!

    All is lost. We don’t stand a chance against its relentless onslaught of exhaustive research and immaculate rhetoric. We may as well lie down and–Christ, how it pains me to say it–admit that it’s right. My friends, I would like to take these last few moments of stubborn close-mindedness to say that it’s been an honor to dig myself into this hole with you.

    Unless…wait, of course! Why didn’t we think of it before? Volume! Sheer volume! It’s so simple. Quickly now, we don’t have much time! Don’t let it get a word in edgewise! Derisively cut it off mid-sentence! Now, launch the sophomoric personal attacks! Louder, yes, that’s it, louder! Be repetitive, juvenile, and obstinate! It’s working! It’s working!

    We’ve done it! It’s walking away and shaking its head in disgust! Huzzah! Finally–defeated with a single three-minute volley of irrelevant, off-topic shouting!

    Ironic, really, isn’t it?

    Thanks lbcapps

  • What is health care like in the UK, Canada and New Zealand?

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    Three systems widely cited as examples of universal health care are the so-called single-payer systems in the UK, Canada and New Zealand.

    These systems I would describe as “socialized”, and rely for the most part on taxation for funding. The system in Canada for instance, uses taxes to pay for health care administered by the individual provinces, and provided by a mixture of private and public hospitals and health care providers. Private health care is restricted in Canada, but is available in some provinces under publicly-funded private organizations called P3s. Private health insurance is limited in Canada but is available.

    The UK’s National Health Service (NHS) similarly uses taxes but 8% of their population still utilizes private insurance to augment their national health care services. Services from the NHS are entirely free of charge for residents, and prescriptions have a nominal fee regardless of the cost of the medication. The government is the primary employer of health care professionals, and general practitioners (GPs), act as independent contractors employed by the NHS who serve as gatekeepers into the health system. A GP manages your health care and decides if you can see a specialist.

    The New Zealand system is more decentralized with funding of community health boards to serve the needs of the population, primary care since 2001 has been subsidized by the government through Primary Health Organizations designed to allow broad access to primary care for a nominal fee and hospitals and other health services are funded through taxation. They also have a single payer drug service to subsidize prescription drugs and users pay a nominal fee for prescriptions.

    How satisfied are patients with these systems, and what is their quality of care?
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  • What is the cause of excess costs in US healthcare?

    The question has come up again and again in our discussions on health care in the US and around the world, why does it cost so much more in the US when we get so much less?

    The drug companies and their lobbyists are already out in force trying to make sure their pocketbooks aren’t hit by the inevitable reforms that are coming. In particular they insist drugs aren’t the problem in the US, it’s administrative costs! I would tend to disagree.

    Based upon my experience working in the sytem, the main causes of excess costs I would hypothesize are the following (in order of importance):

    1. An excess of cost in administration far out of line with most countries around the world.
    2. Pharmaceutical costs – especially due to the effects of direct to consumer advertising (DTCA) encouraging use of more expensive, newer drugs (which is only allowed in the US), Medicare part D which forbids collective bargaining for lower drug prices, and a broken patent system that allows drug makers to patent and charge more for non-novel medications.
    3. The absence of a universal system that prevents risk-sharing, and causes the uninsured to avoid treatment until problems are more critical, and more expensive.
    4. Excessive reimbursement of physicians for procedural skills, rather than cost-saving physician roles such as primary care and family practice that emphasize early diagnosis and proper management of disease.
    5. Excesses of cost caused by “defensive medicine”. While torts themselves don’t cause a great deal of monetary damage, the culture they create is one of paranoia in physicians who make decisions with lawsuits in mind, rather than the interests of patients and society
    6. The excessive costs in ICU care, especially at the end of life, which may also be reduced by better EMRs with recording of living wills, and public information campaigns designed to inform people about the pain, invasiveness and futility of “doing everything” in the elderly.
    7. The absence of an electronic medical record that is universal which causes redundancy in testing as patients see new doctors who then order redundant tests because sharing of information is so inefficient.

    But these may just be my biased views based on my own limited experience. Let’s see what the data show. The McKinsey Global Institute has generated a report on this, and has broken down the data according to the individual costs in our system, while comparing it to that of other countries.

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  • What is health care like in France?

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    Here it comes. How dare I suggest the US could learn anything from France? By most assessments France provides the best health care in the world, with excellent life expectancy, low rates of health-care amenable disease, and again, despite providing excellent universal care, they spend less per capita than the US. Using about 10.7% of GDP and about 2000USD less per capita than the US they are providing the best health care in the world. To top it off, France’s system isn’t even socialized. That’s right. It’s yet another system that is a mixture of public and private funding that, if anything, provides the greatest level of physician and patient autonomy in making health care decisions. It is not, I repeat, not a single payer system. Doctors are largely self-employed, there is no big government authority telling doctors and patients what to do, just a progressive tax structure and requirements to pay into the system that fully subsidizes a functional healthcare system.

    Start with the Wikipedia entry, if you can stand to read it try the WHO document on the structure of the French system, or various articles which all seem to agree the French system rocks. The few criticisms stem from it’s relative cost compared to the other European systems and perhaps overutilization by citizens. But no one asserts that it provides poor care, that it rations care, that it limits doctor or patient autonomy, or has poor resources.

    As with most health care systems, the more you read about it the more you see how the system reflects the values of the country. But these should be universal values.
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  • What is healthcare like in Germany?

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    What better argument for universal health care can you make than that of Germany? By far one of the most successful systems, it has had some form of universal health care for almost 130 years, and is currently one of the most successful health care systems in the world. It is again, a mixture of public and private funding, with employers providing most of the funding for health care by paying into one of several hundred “sickness funds” that provide health care funding to their employees. Germany is widely regarded as having excellent access, short wait times, care with the best technology and pharmaceuticals available, and this again while spending 10.7% of GDP (US 16%) with per capita spending of ~3.3k USD (approximately half of that in the US).

    The German health care wikipedia entry is a good starting point, and it’s always fun to try to translate German web pages and try to make sense of Google translations. But I’ve found several good articles describing the system including several articles in the MSM like this NYT piece which refers to Americans as having an “… immature, asocial mentality [that] is rare in the rest of the world,” one for travelers, and one for those looking for German jobs. The consensus seems to be that Germany rocks when it comes to health care.

    Let’s talk about how it performs and how it works.

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  • Denying AIDS – A book by Seth Kalichman


    Seth Kalichman is a better man than I. Kalichman is a clinical psychologist, editor of the journal Aids and Behavior and director of the Southeast HIV/AIDS Research and Evaluation (SHARE) product, and he has devoted his life to the treatment and prevention of HIV. Despite a clear passion for reducing the harm done by HIV/AIDS, to research this book he actually met, and interviewed, prominent HIV/AIDS denialists. I confess I simply lack the temperament to have done this. To this day, when I read about HIV/AIDS denialists, and the the 330,000 people who have died as a result of HIV/AIDS denialism, I see red. I think violent, bloody thoughts.

    The HIV/AIDS denialists, like Celia Farber, object to being called denialist, a quote from her in the book:

    Those who wish to engage the AIDS research establishment in the sort of causality debate that is carried on in most other branches of scientific endeavor are tarred as AIDS “denialists,” as if skepticism about the pathogenicity of a retrovirus were the moral equivalent of denying the Nazis slaughtered 6 million Jews.

    To this I would reply that the HIV/AIDS denialists like Duesberg are worse than holocaust deniers. Holocaust deniers are anti-semitic bigots and horrible people sure, but the HIV/AIDS denialists are responsible for an ongoing campaign of death. Because people like Duesberg have convinced morons like Thabo Mbeki of their pseudoscience, hundreds of thousands of people are dead.

    This is why I see red. Denialist is about the nicest thing you could call the likes of Farber and Duesberg.

    Kalichman’s book is well-written, timely, thoroughly researched, and to his great credit he uses my definition of denialism. Ha! How could I help but love this book? The fact that he pursues denialism from a psychological angle, and interacts directly with the critical denialists behind this story make it a profoundly important study and resource in understanding not just HIV/AIDS denialism, but all forms of denialist pseudoscience. This takes a very patient, very dedicated person. I would have lost my temper, lost my patience, or lost my mind to have delved so deep into this madness. Not to mention, I’m not very forgiving or nice to people I perceive as being so detrimental. It’s a personality flaw, I recognize it. That’s why we’re lucky to have people like Seth Kalichman.

    Let’s discuss some of Kalichman’s findings below the fold…
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  • What is healthcare like in the Netherlands?

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    The Dutch really have it together on health care, they have a system that has been proposed as a model for the US to emulate. In stark contrast to many other European systems, it’s actually based entirely on private insurers, rather than a single-payer or entirely national system. Yet the Dutch system is universal, has far superior rates of satisfaction with quality of care and access, and still costs a fraction of what we pay for health care per capita in the US. How is this possible?

    You can read the Wikipedia entry on the Dutch system or read about it on their Ministry of Health’s English webpage or watch the short film on their reforms below.

    So, how does the Dutch system work?

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